Lastly, this picture was just too cute NOT to put in...It shows them reacting to each other almost like they are understanding each other. (It' s a twin thing, you wouldn't understand-hehe) |
Sunday, August 27, 2006
New skills- they are coming at us like bullets!
Connor learned how to hold his bottle first and has been doing it for the last couple of days. Logan just started to yesterday. It is funny now, they see the bottle coming and get all excited and pull it in. Ahhhh....I feel life getting a little easier.
Discovering each other
Wednesday, August 23, 2006
Update from the pulmonologist.
Well, the boys saw a new specialist for the lungs yesterday, Dr. Chowdary. He was very pleased with Connor's progress and his ease of breathing. He prescribed Prevacid for his reflux (the Zantac is disgusting!), but wants us to thicken his formula with cereal for now and try tht first. His weight was up to 13lb 10 oz! He was a bit displeased with Logan's progress, however. He had wondered why he hadn't been referred sooner. He was able to observe Logan eat and how it took him 45 min to eat the 6 oz bottle and he was retracting and breathing hard whenever he got excited or mad. He noted Logan pooping out at the end of his feed. Soooooooooo.. On review of his last chest Xray, he believes this is all related to the cardiac issues going on. He is failing to gain weight as he continues to use his calories to function. If he doesnt gain weight, he doesnt build healthy lung tissue and his heart works harder. Small Fry was just at 12 lbs yesterday. He is on a fluid restriction of sorts and is not allowed more than 6 oz at 4 feeds/day. Instead we have to increase his calories per ounce from 22cal/oz to 24 cal/oz by concentrating his formula more. He also was able to observe Logan reflux and spit up so Prevacid was prescribed for him as well. He also increased his diuretic Lasix again and introduced another diruetic (he had this in the NICU too) Aldactone as this is supposed to spare potassium. He is also to have regular lab work to make sure his electrolytes remain balanced. We talked about the possibility of open heart surgery if his VSD doesnt close on it's own, but that is later down the line. We are hoping he will gain some weight, but if his heart continues to compromise that, it may be necessary to help him grow. He will follow him closely. Both boys have to get flu shots and get the synygis shot to prevent RSV. We may not see much of people this winter as we have been advised to avoid all exposure to persons who are symptomatic of colds and viruses or who are being treated for colds. WE are also not to be around any form of cigarrette smoke too. PAKA, now would be a good time to quit- for our sake!!! Thank you Grandad for quitting!!! That is all for now, we will keep you posted of other things as they come up. Our next Dr appt with the pediatrician is on Sept 6. (more shots-crud!). |
Monday, August 21, 2006
7 months old
Sunday, August 20, 2006
Saturday, August 12, 2006
Update from the surgeon and early intervention team.
Both boys saw Dr Smith, the surgeon, yesterday for follow-ups on thier hydrocele/hernias. To refresh, both boys had umbilical (belly button) hernias and hydroceles and Connor had a bilateral(both sides) inguinal hernia (groin). Connor had surgery May 31 to repair his hernias and hydrocele. He also had his little extra thumb removed. Good news!!! Both boys have healed thier umbilical hernias. Connor got a clean bill of health from the post-op standpoint with no return of his hydrocele. Logan's hydrocele is gone. Both boys only need to return on an as needed basis. He told us preemies are susceptible to hernias in the toddler years so to report any bulges. All is good! They both gained a little more weight and Logan is at 11.5 lb and Connor is at 13lb 3 oz.
Both saw the First Steps early intervention team of physical therapists and occupational therapists Thursday. Connor scored just above his corrected age at 4 months and Logan just behind at 3 months. There was a concern that Logan had some muscle shortening on the side where his incision is, probably due to him favoring it post op. We were instructed to gently stretch and massage that area to help the muscles lengthen. Also there was a small concern regarding hearing as niether really turned toward noise. WE know both startle at loud noises, but she though maybe there was still some fluid from ear infections causing an impairment. We will follow up with the pediatrician. They will do a repeat evaluation in 3 months to see where they are then. For now, no PT or OT.
The boys just love thier Nanny!!
Sunday, August 06, 2006
Our outfits from our cyber aunt Susie (aunt Judy's sister)
Logan enjoying tummy time on the tummy- time Boppy. (ok, we really just wanted a picture of his little behind!)
Connor is on the left and Logan on the right. We just love our new outfits from Aunt Susie! Thank you,it is so good to finally fit in them!